Resources

Frequently Asked Questions (FAQ) for Parents

• What is an IEP, and where can I learn more about it in the context of NYC schools?

  An IEP stands for Individualized Education Program. It's a legally binding document created for each public school child in special education in the US. It outlines the child's learning needs, the services the school will provide, and how progress will be measured. For specific information about IEPs in New York City, the New York City Department of Education (NYC DOE) - Special Education website is the best resource. My child has been identified as having a disability.

• What are my rights as a parent in the NYC special education system?

  INCLUDEnyc is a leading organization in NYC that can help you understand your rights and navigate the special education system. They provide information, training, and advocacy for families of children with disabilities.

• Where can I find support and connect with other parents who have children with learning and attention issues?

  Understood.org offers a community forum and resources specifically designed for parents of children with learning and attention issues, allowing you to connect with others and find support. My other child is a sibling of someone with a developmental disability.

• Are there resources available specifically for them?

  Yes, the Sibling Support Project provides resources and support that address the unique needs and experiences of siblings of individuals with developmental disabilities.

• What are intellectual and developmental disabilities, and where can I find advocacy and support for individuals with these conditions in NYC?

  Intellectual and developmental disabilities are a group of conditions that can impact physical, learning, language, or behavior areas. The Arc advocates for the rights and inclusion of people with these disabilities. You can find local support by searching for the New York City chapter on their website.

• What are some common signs and symptoms of Autism Spectrum Disorder (ASD) that parents should be aware of?

  The National Institute of Mental Health (NIMH) and the Centers for Disease Control and Prevention (CDC) provide information on the signs and symptoms of ASD, as well as information on diagnosis.

• Where can I find support groups and local resources specifically for families affected by autism in the New York City area?

  The Autism Society has local affiliates. You should visit their website and search for the NYC Metro chapter to find support groups and community-based resources in your area.

• What kind of research is being done on autism, and where can I find information about applied research that can directly help my child?

  The Organization for Autism Research (OAR) focuses on funding and sharing applied research findings that aim to directly benefit individuals with autism and their families, offering practical insights and strategies.

• As parents, how can we effectively advocate for our child's educational needs within the special education system?

  Resources like INCLUDEnyc provide training and guidance on how to effectively advocate for your child within the NYC special education system. Understanding your rights and the IEP process are key components of advocacy.

• Where can I find reliable information and support from national organizations dedicated to the autism community?

  Autism Speaks and The Autism Society are two major national organizations offering a wide range of information, resources, support, and advocacy for the autism community.